ECT Survivor Project: Things I never consented to…

The world needs to know how people are lied to about ECT risks, are subsequently injured and left to fend for themselves!

I’m working on a survivor collaboration video about the side effects we never consented to when we had ECT. This video explains what’s involved if you would like to participate. Let me know if you have any questions or suggestions  

https://goo.gl/forms/2BJfXQRpOfwhrPaJ2

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Was Carrie Fisher’s Death ECT Related?

2016 sucked royally. The year started off with the FDA trying to down-classify shock machines to class II when they thought no one was looking.

Then the horrible presidential election ending with Donald Trump as the victor.

The human rights abomination known as the Murphy bill was enthusiastically passed.

Beloved celebrities like Alan Rickman, Gene Wilder, and Prince have passed away,   followed by the Star Wars icon, Carrie Fisher, who died this week after suffering a heart attack.

I have mixed feelings about The world famous actress. I’m not a Star Wars fan so I don’t have a rabid fanaticism for her or other cast members.

As a shock survivor, I empathize with her desperation to control her depression that led to drugs and then ECT.

‘I was getting medication that medication could not handle. It feels like my brain gets moored down in cement and it kind of blows that apart. You can move on from whatever feelings you cannot resolve through therapy and medications.’

-Carrie Fisher, Oprah interview via Daily Mail.com

I can relate to her promotion of it because I felt strongly about it too. That is before I fully understood ECT and its horrific effects outside of my adolescent, psychiatric brainwashing.

I sounded very much like she did when she spoke to Oprah about it. How it was different now. Safer. Helpful.

In interviews, her cognitive impairments are quite obvious though she doesn’t seem to be aware of them which is heartbreaking.

She was duped like the rest of us.

At the same time, I have been exasperated by her ECT promotion. Her massive fame put her in a highly influential position. For those of us trying to educate people the true nature of electroshock and advocate for recognition, protection, and rehabilitation for those injured and cast aside by their doctors and society, she caused problems, though unintentionally. Ultimately, she was a victim and an unwitting pawn in a larger game.

Despite the damage her shock promotion caused, I never wished her any harm.

Her sudden death scares me, which brings me to an issue that has less to do with Carrie and more to do with the risks of ECT.

Risks and death rates are drastically downplayed in consent forms and the media. What most people don’t know is that there has been great efforts to prevent or hinder data collection on ECT-related deaths.

“Furthermore, the APA consent form drastically underestimates mortality associated with ECT by stating a risk of 1 in 10,000, whereas the average of numerous studies indicated a tenfold higher rate of death than suggested by the APA.”

Dr. Daniel Fisher presented to the U.S. Food and Drug Administration Neurological Devices Panel examining the reclassification of electroconvulsive therapy (ECT) devices on January 27, 2011.

Texas was one state who requires deaths to be reported after up to 12 days following ECT. What do results look like with this lengthier follow-up?

More ECT-related deaths. Much more dramatic numbers than the excessively conservative 1- 10,000 in consent forms!

Depending on the age group, it can be as few as  1-200!

This is just a sample of a near two-week time frame. Who knows how many other deaths could be attributed months or years later?

Heart attacks are one of the many ECT-related death causes.

I recently learned that acquaintance’s dad was subjected to ECT and died in his 50’s from a heart attack that was attributed to the shock treatments he had years before.

I want to briefly focus on Carrie Fisher’s Oprah interview where she talked about how ECT is different from old electroshock because they put you under anesthesia.

“They put you to sleep and give you a medication so there is no convulsions …”

~Carrie Fisher, Oprah Inteview

Rather than get into a lengthy explanation about the problems with that common statement of how modified ECT is better, (it’s not, read Dr. Peter Sterling’s entire article linked below) I just want to point out one important fact that I never new before agreeing to ECT and I wonder if Carrie did either: the anesthesia and muscle relaxants offer zero protection for the massive blood pressure increase caused by electrocuting a person into a grand mal seizure. I recently read an in-depth piece about the effect of ECT by Doctor Peter Sterling, via ect.org. I encourage anyone to read the whole article, but below are the quotes relevant to the blood pressure issue:

“Accompanying the convulsion, there is a tremendous rise in blood pressure: changes in arterial pressure from 80mm Hg to 220mm Hg, or almost 200%, have been recorded (Plum, et al, 1968). This overall response resembles the “grand mal” seizure that occurs in epilepsy…

Thus, the later modifications of ECT can relieve the threat of cerebral anoxia, but not the threat of high pressure, bleeding, loss of blood-brain barrier, or edema

… In accomplishing such massive increases in blood flow, the automatic mechanisms that normally regulate cerebral blood flow are overwhelmed. For the duration of the seizure and for sometime following it, blood flow to the brain becomes like that of must other tissues in the body — proportional to the arterial pressure forcing the blood through the vessels. These changes accompanying ECT are not modified by the administration of anesthetic, paralytic drugs or oxygen (Plum, et al., 1968; Posner, et al., 1969).

~Dr. Peter Sterling, Ph.D., Testimony Prepared for the Standing Committee on Mental Health of the Assembly of the State of New York, October 5, 1978.

Looking at the physiologic effects of electroshock I have to wonder, was Carrie Fisher’s heart attack in part from her many medically induced seizures? What role did all the pharmaceuticals she took play in her death?

Even though I stopped ECT and drugs ten years ago, am I destined for the same fate in 30 years?

All I can think right now is #fuck2016 !

References

BBC. (2016, December 27). Carrie Fisher, Star Wars actress, dies aged 60 – BBC News. Retrieved December 27, 2016, from http://www.bbc.com/news/entertainment-arts-38446753?ocid=socialflow_facebook&ns_mchannel=social&ns_campaign=bbcnews&ns_source=facebook

Boodman, S. J. (1996, September 24). SHOCK THERAPY: IT’S BACK – The Washington Post. Retrieved December 27, 2016, from https://www.washingtonpost.com/archive/lifestyle/wellness/1996/09/24/shock-therapy-its-back/35a22683-a87d-4946-81a6-cabf1bb5a37b/?utm_term=.ed4a03e04218

Fisher, D. (2011, January 27). Dr. Daniel Fisher on ECT | Psych Central. Retrieved December 27, 2016, from http://psychcentral.com/lib/dr-daniel-fisher-on-ect/

Frank, L. R.Retrieved from http://endofshock.com/101i%20brochure%20on%20deaths%203-29.pdf

Sterling, P. (1978, October 5). Brain Damage and Memory Loss From ECT. Retrieved December 27, 2016, from http://www.ect.org/effects/testimony.html

Thompson, J. (2011, February). Carrie Fisher confesses to Oprah that she has regular electric shock therapy to help her battle depression | Daily Mail Online. Retrieved December 27, 2016, from http://www.dailymail.co.uk/tvshowbiz/article-1357601/Carrie-Fisher-confesses-Oprah-regular-electric-shock-therapy-help-battle-depression.html

Tracy, A. B. (2016, December 12). UPDATE: CARRIE FISHER DEAD AT 60 – ANTIDEPRESSANTS PLUS ???: Carrie Fisher Suffers Massive Heart Attack on Airplane – INTERNATIONAL COALITION FOR DRUG AWARENESS. Retrieved December 28, 2016, from http://www.drugawareness.org/antidepressants-plus-carrie-fisher-suffers-massive-heart-attack-on-airplane/

Dr. Daniel Fisher on ECT | Psych Central


Read the entire presentation here

Comments by Shock Survivors and Their Loved Ones – Mad In America

“The #fdastoptheshockdevice has received over 2,200 signatures  and 800+ comments.” Read the latest on our efforts, and survivor and family accounts of the “procedure.” If you haven’t signed the petition yet, please do so now and share! This reclassification must not be allowed! http://www.madinamerica.com/2016/04/comments-by-shock-survivors-and-their-loved-ones/

BBC News | HEALTH | Shock therapy: ‘Ruined lives’

via BBC News | HEALTH | Shock therapy: ‘Ruined lives’


Electroconvulsant Shock Therapy (ECT): Is it Safe or Even Effective? | Global Research – Centre for Research on Globalization

via Electroconvulsant Shock Therapy (ECT): Is it Safe or Even Effective? | Global Research – Centre for Research on Globalization.

Woman died after NHS electric shock therapy was given without consent or second opinion – Mirror Online

via Woman died after NHS electric shock therapy was given without consent or second opinion – Mirror Online.

I read this and think, this could have happened to anyone of us when were were getting shocked.

It’s beyond disturbing to see how its viewed by the legal system and hospital. If I had died like this, it would just get brushed off as “extremely rare” circumstance so she, like other survivors who are injured or killed by shock don’t matter.

What we don’t hear is how the hospital “treated” her “mental illness,” everything they tried, because they’re doctors. And you sure as hell can’t hear Elsie’s side of the story, now that she’s dead.

At least Elsie Tindle’s death is getting media attention and someone is trying to do something about it via Electric shock therapy death: Sunderland coroner writes to Health Secretary in bid to prevent further fatalities – Sunderland Echo.

1 in 50,000

It’s no small wonder why it’s so hard for shock survivors to get doctors or lay people to believe we have brain damage when all they see is blatantly dishonest promotional information like this.

ECT statistics

Central and North West London (CNWL) NHS Foundation Trust produce a patient information leaflet on electroconvulsive therapy (ECT) which makes the astonishing claim that the “risk of any problems” is one in 50,000 treatments.

“ECT is amongst the safest medical treatments given under general anaesthesia. The risk of any problems is one in 50,000 treatments which is much lower than childbirth for instance”.

The CNWL Trust leaflet is based on one published by the Royal College of Psychiatrists in 1995 and now withdrawn by them, although it lives on in several mental health trusts. The 1 in 50,000 statistic is anyway repeated in the current Royal College leaflet on ECT. The Royal College version however referred to the risk of “death or serious injury” which the CNWL Trust have changed to “any problems“. I wonder what they mean by a “problem“? And where does the statistic actually come…

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